By Samra Jones Bufkins He's been home from the hospital for 10 days. His meds were radically adjusted (more on that in another blog). I've been walking on eggshells the whole time. He's grouchy, and the last 4 nights he's gotten up at least 2 times, usually more. When doesn't sleep, neither do I. Yesterday … Continue reading Caregiver’s Log, Thursday, May 24, 2018. When Alzheimer’s gets Angry Part 2
By Samra Jones Bufkins Lately he's been having hallucinations. My last post described him acting out against light fixtures and a ceiling fan. He has had illusions of people in the house before. Today, after his doctor's appointment to adjust his mood-stabilizing and antipsychotic meds, I noticed him in the kitchen, pointing at the window … Continue reading Caregiver’s Log, May 1, 2018
Turning on a dime By Samra Jones Bufkins Bill is usually very happy to eat whatever I cook for him, unless it's too spicy. Today, we experienced another behavior that is becoming increasingly common. We went to Palm Sunday Mass and arrived home at about 1 p.m. We spent some time reading the paper and … Continue reading Caregiver’s Log, Sunday March 25, 2018
By Samra Jones Bufkins Saturday Lunch in Alzheimer's Land We decided to eat lunch in front of the TV today, watching the March for Our Lives and planning to watch March Madness later. I made chicken salad from scratch, and used sourdough bread to make big, thick sandwiches, which were served with apple slices and … Continue reading Caregiver’s Log, Saturday March 24, 2018
By Samra Jones Bufkins Not long ago I wrote a post about "getting real." Since then it's gotten better, but not much. The other morning, right before his physical therapist arrived, he came out of the guest bathroom. I didn't see him leave, but he circled through my office and the kitchen, and when I saw … Continue reading More about getting real
January 30, 2018 TMI Alert: This one doesn't sugarcoat anything. For the third January in a row, we've been to the ER. This time, hubby was admitted for pneumonia on January 2. Ten days later he was moved to a skilled nursing rehab facility to work on regaining strength and balance. That was 2 weeks … Continue reading Time to get real about this
by Samra Jones Bufkins I’m going to start “Caregiver Logs” (inspired by Star Trek’s Captain’s Log) as part of this blog, describing incidents and behaviors we experience. For the first few posts I’ll be going back in recent time. I’ll venture into the TMI zone here, because people need to know that hostility, agitation and … Continue reading Caregiver’s Log, October 13, 2017
There’s a term for one of the feelings caregivers suffer while their loved one is still alive—Ambiguous Loss.* Caregivers for people with dementia suffer the painful paradox of living with a person who is physically present but sometimes psychologically absent. The rollercoaster ride of good days and bad days exacerbates the ambiguity of the loss.